Information for De-identified users
Introduction - What is the purpose of the De-identified Data Set?
- We aim for this to be seen as a self-serve portal for NWL data, for users to query anonymised data for their own projects.
- A facility to allow users to publish assured analysis with support from the WSIC team.
- Identify cohorts of patients with Long term Conditions .
- Identify cohorts of patients with care plans
- Allow pathway analysis across the local health sector using multiple data sources
User Group Meetings
DID Use Cases
COVID-19 NWL Data Prioritisation Group
The Covid-19 Data Prioritisation Group ensures appropriate research access to the North West London Covid-19 dataset to ensure clinical priorities are met as part of the sector-wide response to Covid-19. North West London as part of the sector-wide response to Covid-19, has created a Covid-19 specific de-personalised data set which brings in data from Imperial College Healthcare NHS Trust and the region’s linked longitudinal data set. This new data set is hosted by WSIC and NIHR Imperial BRC in secure, high-performance environments.
To ensure that requests to access NWL's Covid-19 personalised linked data set can be reviewed in a timely manner and with the appropriate rigour and governance a COVID-19 NWL Data Prioritisation Group has been established.
This group will meet weekly to review both operational and research related requests to access the depersonalised data for Covid-19 related issues. This new agile mechanism will ensure that the enriched data set can be used to answer Covid-19 operational questions and test research hypothesis in a timely way.
This review process compliments other work the Hub has been supporting in terms of expediting access to, and linkage of, priority data sets that has included near to real-time feeds from the NWL Pathology Labs, daily feeds from the five NWL Trusts at patient level in the form of the NHS England Sit rep report, Coordinate My Care flags, NHS Digital Shielded Population list and NHAIS population data.
The Research Project Data Access Request Form
Data access requests must be submitted online via completion of the NWL Covid-19 Research Project Data Access Request Form. This will then be considered by the COVID-19 NWL Data Prioritisation Group and a response issued within a week. The Research Project Data Access Request Form can be found here.
Further information regarding the The Covid-19 Data Prioritisation Group can be found here.
Approved Service Evaluation Projects
A list of approved service evaluation projects can be found here.
WSIC De-identified Data FAQ's
De-identified frequently asked questions can be found here.